Understanding scoliosis in individuals with myelomeningocele
Penn State Spina Bifida Clinic Registry
This study is looking at how scoliosis is connected to other health issues in kids and adults with myelomeningocele, to help doctors find better ways to treat scoliosis in these patients.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Pennsylvania State Univ Hershey Med Ctr NIH-funded |
| Lab location | 1 site (Hershey, United States) |
| Project ID | NIH-11141539 on NIH RePORTER |
What this research studies
This research investigates the complex relationship between scoliosis and various neurological and musculoskeletal factors in children and adults with myelomeningocele. The team will analyze data from the National Spina Bifida Patient Registry to identify neurosurgical factors that contribute to the need for scoliosis correction. They will examine the frequency of scoliosis surgeries, the variability in treatment across clinics, and the impact of prior tethered cord release on surgical outcomes. By understanding these relationships, the research aims to improve treatment strategies for scoliosis in this population.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with myelomeningocele who are experiencing scoliosis or are at risk for developing it.
Not a fit: Patients without myelomeningocele or those who do not have scoliosis may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective treatment protocols for scoliosis in individuals with myelomeningocele, potentially improving their quality of life.
How similar studies have performed: Previous research has shown that understanding the underlying factors of scoliosis in similar populations can lead to improved surgical outcomes, indicating that this approach has potential for success.
Where this research is happening
Hershey, United States
- Pennsylvania State Univ Hershey Med Ctr — Hershey, United States (Active)
Researchers
- Principal investigator: Dias, Mark Steven — Pennsylvania State Univ Hershey Med Ctr
- Study coordinator: Dias, Mark Steven
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.