Understanding rare aggressive sarcomas in children and adults through patient collaboration
Count Me In: Partnering with patients to define the clinical and genomic landscape of rare aggressive sarcomas in children and adults
This study is working with patients who have osteosarcoma or leiomyosarcoma to gather important information that could lead to better treatments and diagnoses for these rare cancers.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Broad Institute, INC. NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project ID | NIH-10930688 on NIH RePORTER |
What this research studies
This research focuses on osteosarcoma and leiomyosarcoma, two rare types of cancer that affect bones and smooth muscles. By partnering with patients, the project aims to create a comprehensive database that includes clinical, genomic, and patient-reported data. This collaborative effort will help identify new treatment strategies and improve diagnostic methods. The research will involve engaging both adult and pediatric patients to contribute their experiences and data, which will be analyzed to accelerate discoveries in treatment.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with osteosarcoma or leiomyosarcoma, both children and adults.
Not a fit: Patients with other types of cancer or those not diagnosed with osteosarcoma or leiomyosarcoma may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment options and better outcomes for patients with rare aggressive sarcomas.
How similar studies have performed: Previous research has shown that patient-partnered approaches can successfully generate valuable clinical and genomic data, making this a promising strategy.
Where this research is happening
Cambridge, United States
- Broad Institute, INC. — Cambridge, United States (Active)
Researchers
- Principal investigator: Janeway, Katherine a — Broad Institute, INC.
- Study coordinator: Janeway, Katherine a
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.