Understanding Pendrin to Help Children with Hearing Loss

Structure and mechanism of pendrin and the mutations that cause Pendred's Syndrome

NIH-funded research Columbia University Health Sciences · NIH-11103314

This research aims to understand how a protein called pendrin works, which could lead to new ways to help children with a genetic form of hearing loss called Pendred Syndrome.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionColumbia University Health Sciences NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11103314 on NIH RePORTER

What this research studies

Pendred Syndrome and enlarged vestibular aqueduct syndrome (EVAS) are genetic conditions that cause early childhood hearing loss and are currently without a cure. These conditions are linked to problems with a protein called pendrin, which is important for how cells in the inner ear, thyroid, and kidney manage salts and water. Our current understanding of pendrin is limited because it's been hard to study precisely. This project has successfully purified the pendrin protein and developed new ways to study how it works, including how it moves different ions across cell membranes. By learning more about pendrin's structure and function, we hope to uncover new targets for future treatments.

Who could benefit from this research

Good fit: This foundational research is not directly recruiting patients, but future clinical applications would target children affected by Pendred Syndrome or enlarged vestibular aqueduct syndrome (EVAS).

Not a fit: Patients without Pendred Syndrome or EVAS, or those with other forms of hearing loss not related to the pendrin protein, would not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this research could provide fundamental insights into Pendred Syndrome and EVAS, paving the way for the development of new therapies to treat or prevent childhood hearing loss.

How similar studies have performed: Previous studies have highlighted pendrin's role in disease, but this project offers a novel approach by purifying the protein for precise functional and structural studies, which has been a significant challenge.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.