Understanding patient priorities for quality of life in lung transplant decisions
Patient Priorities in Lung Transplant: Quality of Life Outcomes to Inform Decision Making
This study is looking at how people with severe lung disease and their caregivers think about what matters most to them when deciding whether to get a lung transplant, so they can create a helpful tool that makes it easier for them to understand how the transplant might affect their quality of life.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Temple Univ of the Commonwealth NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-11014341 on NIH RePORTER |
What this research studies
This research investigates how patients with end-stage lung disease and their caregivers prioritize quality of life outcomes when making decisions about lung transplantation. By engaging patients and caregivers through interviews and surveys, the study aims to identify key factors that influence their decision-making process. The findings will help develop a decision aid that effectively communicates the potential impacts of transplantation on quality of life, ultimately supporting patients in making informed choices about their care.
Who could benefit from this research
Good fit: Ideal candidates for this research include patients with end-stage lung disease and their caregivers who are contemplating lung transplantation.
Not a fit: Patients who are not considering lung transplantation or who have already undergone the procedure may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved decision-making tools that enhance the quality of life for patients considering lung transplantation.
How similar studies have performed: Previous research has shown that decision aids can significantly improve patient understanding and satisfaction in complex medical decisions, indicating a promising approach for this study.
Where this research is happening
Philadelphia, United States
- Temple Univ of the Commonwealth — Philadelphia, United States (Active)
Researchers
- Principal investigator: Hollin, Ilene L. — Temple Univ of the Commonwealth
- Study coordinator: Hollin, Ilene L.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.