Understanding parents' experiences when seeking emergency care for injured children with special health care needs
Official title: Experiences of Parents Seeking Emergency Care for Injured Children with Special Health Care Needs
Funded at State University of New York at Buffalo · NIH-10953800 · Data updated 2026-11-12
This study is looking to understand how parents and caregivers feel when they take their children with special health needs, like Autism or Asthma, to the emergency room after an injury, so we can find ways to make their care better and easier.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | State University of New York at Buffalo NIH-funded |
| Lab location | 1 site (Amherst, United States) |
| Project start | August 15, 2024 |
| Project end | July 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $159,103 |
| NIH project number | 1R03TR005206-01 |
| Project ID | NIH-10953800 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are parents or caregivers of children aged 0-11 years with special health care needs who have experienced an injury requiring emergency care.
✕Less likely to help
Patients who do not have special health care needs or who have not experienced an injury requiring emergency care may not benefit from this research.
What this research studies
This research investigates the experiences of parents and caregivers when they seek emergency care for children with special health care needs, such as Autism or Asthma, who have sustained injuries. By conducting interviews and collecting demographic data, the study aims to identify factors that contribute to poor care quality and hospital complications. The goal is to understand how the care process can be improved from the family perspective, addressing barriers that may affect the outcomes of injured children. This qualitative approach will provide valuable insights into the challenges faced by families during emergency situations.
Why it matters
Potential benefit: If successful, this research could lead to improved emergency care protocols for children with special health care needs, ultimately enhancing their health outcomes.
How similar studies have gone: While there is ongoing research into emergency care for children, this specific focus on the family perspective of care for children with special health care needs is relatively novel.
Where this research is happening
-
State University of New York at Buffalo
Amherst, United States Active
Researchers
- Principal investigator: Lillvis, Denise Finley — State University of New York at Buffalo
- Study coordinator: Lillvis, Denise Finley
Related research
Other NIH-funded projects on the same topics.
-
How parents' public work programs affect children's health and learning in LMICs
A study will look at how families' participation in government cash-for-work programs influences kids’ health, education, and well-being in several low- and middle-income countries.
-
How parents' participation in public work programs may affect children's health and education in low- and middle-income countries
A study at Duke University will look at how families in poor countries who join public work programs might influence their children’s health, schooling, and well-being.
-
Building Community Health Workers’ Capacity to Support Parents with Young Children in Kenya
A project in Kenya trains and supports Community Health Workers to help parents of young children prevent and reduce risk factors for noncommunicable diseases.
-
PREEMIE PROGRESS: a family program to help parents of very preterm babies
A family-centered program that teaches parents how to care for very preterm infants, offers psychosocial support, and connects families with resources to address social needs.
-
Culturally tailored Youth Mental Health First Aid for Asian American Parents
A program helps Asian American parents learn how to recognize and respond to their teens’ mental health signs in a culturally respectful way.
-
Information and social media use for autism info in young children
A research project looks at how speech-language pathologists and parents of young autistic children use social media for information and what makes that information trustworthy.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.