Understanding non-compaction cardiomyopathy to improve patient care
International Consortium for Multimodality Phenotyping in Adults with Non-compaction
This study is looking at non-compaction cardiomyopathy (NCCM) to help doctors tell the difference between serious and less serious heart issues, using data from many adults with this condition to improve how they diagnose and treat it, ultimately aiming to help patients live healthier lives.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Stanford University NIH-funded |
| Lab location | 1 site (Stanford, United States) |
| Project ID | NIH-10674511 on NIH RePORTER |
What this research studies
This research investigates non-compaction cardiomyopathy (NCCM), a heart condition that can lead to serious complications like heart failure and stroke. By analyzing clinical, genetic, and imaging data from a large group of adults suspected to have NCCM, the study aims to better differentiate between harmful and benign heart structures. The research utilizes advanced computer analytics and combines expertise from multiple centers to enhance risk assessment and treatment strategies for patients. Ultimately, the goal is to improve patient outcomes by refining diagnostic criteria and treatment approaches.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults diagnosed with or suspected of having non-compaction cardiomyopathy.
Not a fit: Patients with other unrelated heart conditions or those without any cardiac issues may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more accurate diagnoses and tailored treatments for patients with non-compaction cardiomyopathy, reducing unnecessary interventions.
How similar studies have performed: Previous research has shown promise in using advanced imaging and analytics for better understanding of cardiomyopathies, indicating potential for success in this approach.
Where this research is happening
Stanford, United States
- Stanford University — Stanford, United States (Active)
Researchers
- Principal investigator: Nieman, Koen — Stanford University
- Study coordinator: Nieman, Koen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.