Understanding Muscle Weakness in Myotonic Dystrophy

Mechanism of Skeletal Muscle Calcium Dysregulation in Myotonic Dystrophy

NIH-funded research University of Rochester · NIH-11101114

This research aims to understand why muscles weaken in Myotonic Dystrophy and explore if an existing medication could help.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Rochester NIH-funded
Lab location1 site (Rochester, United States)
Project IDNIH-11101114 on NIH RePORTER

What this research studies

Myotonic Dystrophy causes muscles to weaken because certain genetic instructions for muscle function get mixed up, similar to how they are in babies. This project uses specially developed mouse models that mimic these genetic changes to understand exactly how they lead to severe muscle problems and breathing difficulties. Researchers are also testing if a calcium channel blocker, a type of medication already approved for other uses, can improve muscle strength and breathing in these models. The goal is to find new ways to treat muscle weakness in people with Myotonic Dystrophy.

Who could benefit from this research

Good fit: This foundational research is relevant for adults aged 21 and older living with Myotonic Dystrophy.

Not a fit: Patients without Myotonic Dystrophy would not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to new or repurposed drug treatments that improve muscle strength and breathing for individuals with Myotonic Dystrophy.

How similar studies have performed: Preliminary studies in mouse models have shown that an FDA-approved calcium channel blocker can rescue severe muscle weakness and respiratory issues.

Where this research is happening

Rochester, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.