Understanding missed care in family caregiving for Alzheimer's disease
Missed Care in Family Caregiving for Alzheimer's Disease and Related Dementias
This study is looking at how family members who care for loved ones with Alzheimer's and similar conditions handle times when they can't provide all the care that's needed, and it aims to find ways to make caregiving easier and better for everyone involved.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Texas Hlth Sci Ctr Houston NIH-funded |
| Lab location | 1 site (Houston, United States) |
| Project ID | NIH-11078749 on NIH RePORTER |
What this research studies
This research investigates how family caregivers for individuals with Alzheimer's disease and related dementias experience and manage missed care, which refers to necessary care that is not provided due to various constraints. By enrolling 225 family caregivers from the local health system, the study will utilize daily diary surveys to capture their caregiving experiences and decision-making processes. The research aims to apply a well-established missed care model to better understand the factors that lead to missed care in family settings, including time demands and resource limitations. The findings could help identify strategies to improve caregiving practices and outcomes for patients.
Who could benefit from this research
Good fit: Ideal candidates for this research are family caregivers of individuals diagnosed with Alzheimer's disease or related dementias.
Not a fit: Patients who are not involved in family caregiving or do not have a diagnosis of Alzheimer's disease or related dementias may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved support and resources for family caregivers, enhancing the quality of care for individuals with Alzheimer's disease.
How similar studies have performed: Previous research has shown that understanding missed care in healthcare settings can lead to significant improvements in patient outcomes, suggesting that this approach may also be beneficial in family caregiving contexts.
Where this research is happening
Houston, United States
- University of Texas Hlth Sci Ctr Houston — Houston, United States (Active)
Researchers
- Principal investigator: Pickering, Carolyn E Ziminski — University of Texas Hlth Sci Ctr Houston
- Study coordinator: Pickering, Carolyn E Ziminski
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.