Understanding lupus through population studies
DP22-002 Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts - 2022
['FUNDING_U01'] · MAYO CLINIC ROCHESTER · NIH-10846543
This study is looking at how lupus affects people by gathering information from different groups of patients with the condition, so we can learn more about their experiences, treatment options, and any challenges they face in getting care.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | MAYO CLINIC ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-10846543 on ClinicalTrials.gov |
What this research studies
This research investigates the epidemiology of lupus by assembling population-based cohorts of individuals with systemic lupus erythematosus (SLE) and cutaneous lupus erythematosus (CLE). It aims to expand knowledge on the natural history, treatment options, healthcare access, and disparities faced by lupus patients. Utilizing the Rochester Epidemiology Project, the study follows individuals across various healthcare settings, ensuring a comprehensive understanding of lupus in diverse populations. The research includes longitudinal data collection on diagnoses, treatments, and patient outcomes.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with systemic or cutaneous lupus, as well as those from the general population for comparison.
Not a fit: Patients without a diagnosis of lupus or those who do not reside in the study's geographic area may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and management of lupus, ultimately enhancing patient care and outcomes.
How similar studies have performed: Previous research utilizing similar population-based approaches has successfully enhanced understanding of chronic diseases, indicating potential for success in this study.
Where this research is happening
ROCHESTER, UNITED STATES
- MAYO CLINIC ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: CROWSON, CYNTHIA S — MAYO CLINIC ROCHESTER
- Study coordinator: CROWSON, CYNTHIA S
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.