Understanding Lupus in Children and Young Adults
DP22-002 Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts - 2022
['FUNDING_U01'] · UNIVERSITY OF UTAH · NIH-10846547
This study is looking at how childhood lupus affects kids and young adults over time, focusing on their health, pain, and quality of life, to find better ways to help them feel better and live well.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF UTAH (nih funded) |
| Locations | 1 site (SALT LAKE CITY, UNITED STATES) |
| Trial ID | NIH-10846547 on ClinicalTrials.gov |
What this research studies
This research investigates the long-term effects and treatment outcomes of pediatric-onset systemic lupus erythematosus (pSLE) in children and young adults. By utilizing a large patient registry, the study aims to gather comprehensive data on biological and non-biological factors that influence the health of these patients. It will focus on critical issues such as lupus nephritis and neuropsychiatric outcomes, as well as patient-reported outcomes like pain and quality of life. The findings will help develop future interventions to enhance the well-being of young patients with lupus.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and young adults diagnosed with pediatric-onset systemic lupus erythematosus.
Not a fit: Patients with adult-onset lupus or those without a diagnosis of lupus may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and better quality of life for children and young adults with lupus.
How similar studies have performed: Previous research has shown success in understanding chronic autoimmune conditions through longitudinal studies, indicating a promising approach for this investigation.
Where this research is happening
SALT LAKE CITY, UNITED STATES
- UNIVERSITY OF UTAH — SALT LAKE CITY, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HERSH, AIMEE O — UNIVERSITY OF UTAH
- Study coordinator: HERSH, AIMEE O
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.