Understanding Indigenous perspectives on research and data sharing in Arizona
Official title: UA Research Project: Developing policy recommendations: Indigenous leader and individuals' perspectives on research, governance, and data sharing in Arizona
Funded at Inter Tribal Council of Arizona, INC. · NIH-10922712 · Data updated 2026-11-12
This study is talking to Indigenous leaders and community members in Arizona to understand their thoughts on how research data should be managed and shared, making sure their rights and interests are respected, so that future research can be done in a way that honors their voices and values.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Inter Tribal Council of Arizona, INC. NIH-funded |
| Lab location | 1 site (Phoenix, United States) |
| Project start | September 23, 2021 |
| Project end | July 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $215,184 |
| NIH project number | 5S06GM142123-04 |
| Project ID | NIH-10922712 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include Indigenous individuals and leaders from Arizona who have insights into research governance and data sharing.
✕Less likely to help
Patients who are not part of Indigenous communities or do not have a stake in research governance may not benefit from this research.
What this research studies
This research investigates the views of Indigenous leaders and community members in Arizona regarding the governance and sharing of research data. Through workshops and interviews, the project aims to identify ethical concerns and the importance of tribal sovereignty in data management. The findings will help shape policies that respect Indigenous rights and interests in research practices. By focusing on community perspectives, the research seeks to enhance ethical standards in biomedical and genomics research.
Why it matters
Potential benefit: If successful, this research could lead to more ethical and respectful research practices that honor Indigenous rights and improve data governance.
How similar studies have gone: Similar research in other regions has highlighted the importance of Indigenous perspectives in ethical research practices, indicating a growing recognition of these issues.
Where this research is happening
-
Inter Tribal Council of Arizona, INC.
Phoenix, United States Active
Researchers
- Principal investigator: Carroll, Stephanie Russo — Inter Tribal Council of Arizona, INC.
- Study coordinator: Carroll, Stephanie Russo
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.