Understanding how to enroll diverse Latinos in brain donation studies for Alzheimer's research
Pathways to enrolling diverse Latinos in autopsy studies: Insights from a largelongitudinal study
['FUNDING_CAREER'] · UNIVERSITY OF CALIFORNIA, SAN DIEGO · NIH-11019707
This study is looking to understand why Latino individuals might want to participate in brain donation studies for Alzheimer's and related conditions, so we can create helpful materials and make it easier for them to get involved.
Quick facts
| Phase | ['FUNDING_CAREER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF CALIFORNIA, SAN DIEGO (nih funded) |
| Locations | 1 site (LA JOLLA, UNITED STATES) |
| Trial ID | NIH-11019707 on ClinicalTrials.gov |
What this research studies
This research focuses on exploring the motivations and intentions of Latino individuals regarding participation in brain donation studies related to Alzheimer's Disease and Related Dementias (ADRD). The project aims to develop culturally-tailored educational materials and a survey instrument to better understand and enhance participation in these studies. By engaging with the community and utilizing mixed methods, the research seeks to identify barriers and facilitators to consent for brain donation, particularly in Latino populations. The findings could lead to improved recruitment strategies for future studies.
Who could benefit from this research
Good fit: Ideal candidates for this research are Latino individuals who are considering participation in brain donation studies related to Alzheimer's disease.
Not a fit: Patients who are not of Latino descent or those who are not interested in participating in brain donation studies may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to increased participation of diverse Latino populations in Alzheimer's research, ultimately contributing to better understanding and treatment of the disease.
How similar studies have performed: While there is ongoing research in community engagement for diverse populations, this specific focus on Latino participation in brain donation studies is relatively novel.
Where this research is happening
LA JOLLA, UNITED STATES
- UNIVERSITY OF CALIFORNIA, SAN DIEGO — LA JOLLA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: MORLETT PAREDES, ALEJANDRA — UNIVERSITY OF CALIFORNIA, SAN DIEGO
- Study coordinator: MORLETT PAREDES, ALEJANDRA
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Alzheimer disease dementia, Alzheimer syndrome