Understanding how to communicate genetic research to Native American populations
Communicating Heath Advancements from Native GEnetics Research (CHANGE Research)
This study is all about finding better ways to connect with American Indian and Alaska Native communities about Alzheimer's research, so they can feel more comfortable and interested in participating in important studies that could help with diagnosis and treatment.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Washington State University NIH-funded |
| Lab location | 1 site (Pullman, United States) |
| Project ID | NIH-11135229 on NIH RePORTER |
What this research studies
This research focuses on improving participation of American Indian and Alaska Native (AI/AN) populations in Alzheimer's disease and related dementias (ADRD) research. It aims to identify effective ways to communicate about biomarkers and genetic research, which are essential for accurate diagnosis and drug development. By using a multi-method approach, the research will gather insights into AI/AN perceptions and preferences regarding genetic research. The findings will help create tailored communication and recruitment materials to enhance engagement in ADRD studies.
Who could benefit from this research
Good fit: Ideal candidates for this research include American Indian and Alaska Native individuals, particularly elders, who are at risk for Alzheimer's disease and related dementias.
Not a fit: Patients who are not part of the American Indian or Alaska Native populations may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to increased participation of AI/AN populations in ADRD research, ultimately improving health outcomes and reducing disparities in diagnosis and treatment.
How similar studies have performed: While there have been efforts to increase minority participation in ADRD research, this specific approach to communicating genetic research to AI/AN populations is novel and has not been extensively tested.
Where this research is happening
Pullman, United States
- Washington State University — Pullman, United States (Active)
Researchers
- Principal investigator: Boyd, Amanda D. — Washington State University
- Study coordinator: Boyd, Amanda D.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.