Understanding how parent and youth characteristics affect growth hormone treatment decisions and quality of life for short stature
A new paradigm of short stature: Incorporating parent and youth characteristics into understanding GH-related decision making and trajectories of quality of life and self-esteem
['FUNDING_R01'] · CHILDREN'S HOSP OF PHILADELPHIA · NIH-10559490
This study is looking at how both parents and kids make choices about growth hormone treatment for children who are shorter than average, focusing on how these decisions affect the kids' happiness and self-esteem, so we can find better ways to support them and their families.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CHILDREN'S HOSP OF PHILADELPHIA (nih funded) |
| Locations | 1 site (PHILADELPHIA, UNITED STATES) |
| Trial ID | NIH-10559490 on ClinicalTrials.gov |
What this research studies
This research investigates how the characteristics of both parents and youth influence the decision-making process regarding growth hormone (GH) treatment for children with short stature. It aims to understand the psychosocial factors that affect quality of life and self-esteem in youth aged 8-14 years, rather than just focusing on height as the primary outcome. By following participants over two years, the study will gather qualitative and quantitative data to explore the relationship between height, psychosocial adjustment, and overall well-being. The findings could help tailor treatment approaches to better meet the needs of children and their families.
Who could benefit from this research
Good fit: Ideal candidates for this research are youth aged 8-14 years who are being evaluated for growth hormone treatment due to short stature.
Not a fit: Patients who are not experiencing short stature or those outside the age range of 8-14 years may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies that enhance the quality of life and self-esteem for children with short stature.
How similar studies have performed: Previous research has indicated that psychosocial factors significantly influence treatment decisions and outcomes, suggesting that this approach could yield valuable insights.
Where this research is happening
PHILADELPHIA, UNITED STATES
- CHILDREN'S HOSP OF PHILADELPHIA — PHILADELPHIA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: GRIMBERG, ADDA — CHILDREN'S HOSP OF PHILADELPHIA
- Study coordinator: GRIMBERG, ADDA
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.