Understanding how nontuberculous mycobacterial pulmonary disease affects patients
Official title: Patient reported outcomes in patients with nontuberculous mycobacterial pulmonary disease
Funded at Oregon Health & Science University · NIH-10895479 · Data updated 2026-11-12
This study is looking to understand how living with nontuberculous mycobacterial pulmonary disease (NTM-PD) affects your daily life, including symptoms like cough and fatigue, so we can find better ways to help you feel better.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Oregon Health & Science University NIH-funded |
| Lab location | 1 site (Portland, United States) |
| Project start | August 1, 2023 |
| Project end | July 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $653,961 |
| NIH project number | 5R01HL169759-02 |
| Project ID | NIH-10895479 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adults over 21 years old who have been diagnosed with nontuberculous mycobacterial pulmonary disease.
✕Less likely to help
Patients with other respiratory conditions not related to nontuberculous mycobacteria may not benefit from this research.
What this research studies
This research investigates the experiences of patients suffering from nontuberculous mycobacterial pulmonary disease (NTM-PD), which is caused by environmental pathogens and can lead to chronic respiratory issues. The study focuses on gathering patient-reported outcomes to better understand symptoms like cough, fatigue, and shortness of breath, and how these symptoms impact daily life. By evaluating these outcomes, the research aims to improve treatment approaches and patient care for those affected by this condition. The methodology includes collecting data on patient experiences and treatment responses over an extended period.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and better quality of life for patients with NTM-PD.
How similar studies have gone: Previous research has shown that understanding patient-reported outcomes can significantly enhance treatment approaches in chronic respiratory diseases, indicating a promising avenue for this study.
Where this research is happening
-
Oregon Health & Science University
Portland, United States Active
Researchers
- Principal investigator: Henkle, Emily M. — Oregon Health & Science University
- Study coordinator: Henkle, Emily M.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.