Understanding how nerve cell proteins change in ALS

Identifying mechanisms of neurofilament regulation and turnover in amyotrophic lateral sclerosis

['FUNDING_R01'] · WASHINGTON UNIVERSITY · NIH-11180495

This project aims to understand how certain proteins in nerve cells, called neurofilaments, are regulated and cleared in people with ALS.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorWASHINGTON UNIVERSITY (nih funded)
Locations1 site (SAINT LOUIS, UNITED STATES)
Trial IDNIH-11180495 on ClinicalTrials.gov

What this research studies

Amyotrophic lateral sclerosis (ALS) is a severe condition that causes motor neuron loss, leading to muscle weakness and breathing difficulties. Researchers are focusing on specific proteins, neurofilaments (NfL and pNfH), which are important markers of nerve damage in ALS. We know that a new treatment for a specific type of ALS can lower these neurofilament levels, but we need to better understand how these proteins are regulated and removed from the body. This work uses advanced techniques to look at these proteins in detail, including finding new forms of NfL in spinal fluid.

Who could benefit from this research

Good fit: This foundational research is for patients with Amyotrophic Lateral Sclerosis (ALS) who are interested in how biomarkers are used to understand and potentially treat their condition.

Not a fit: Patients not diagnosed with Amyotrophic Lateral Sclerosis (ALS) would not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to better ways to track ALS progression and develop more effective treatments by targeting the specific ways these nerve cell proteins are managed in the body.

How similar studies have performed: While a recent therapy for a specific type of ALS has shown success in lowering neurofilament levels, this project aims to uncover the underlying mechanisms, which is a novel area of focus.

Where this research is happening

SAINT LOUIS, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: Amyotrophic Lateral Sclerosis Motor Neuron Disease

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.