Understanding how Medicaid services help people with Alzheimer's and related dementias

The Medicaid Waiver Dataset Initiative: The Role of Medicaid Home- and Community-Based Services in Health and Health Care for Persons Living with Alzheimer's Disease and Related Dementias

NIH-funded research Johns Hopkins University · NIH-11134870

This study is looking at how Medicaid services that help people with Alzheimer's and related dementia can support them in staying at home and living better lives, and it will share what it finds to help improve care for everyone.

Quick facts

Grant typeR21 grant
Study typeNIH-funded research
Funding institutionJohns Hopkins University NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11134870 on NIH RePORTER

What this research studies

This research investigates the role of Medicaid Home- and Community-Based Services (HCBS) in supporting individuals living with Alzheimer's Disease and Related Dementia (ADRD). It aims to create a comprehensive dataset that documents the characteristics of Medicaid HCBS waivers across the United States, which are essential for helping patients remain in their homes and communities. By analyzing this data, the research seeks to evaluate how effective these services are in delaying institutionalization and improving the quality of life for those affected by ADRD. The findings will be made publicly available to inform policy and improve care models.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals aged 65 and older who are living with Alzheimer's Disease or related dementias and utilize Medicaid services.

Not a fit: Patients who are younger than 65 or do not rely on Medicaid for home- and community-based services may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved Medicaid services that enhance the quality of life for individuals living with Alzheimer's and related dementias.

How similar studies have performed: Previous research has shown that Medicaid HCBS can significantly improve the quality of life for older adults, indicating a promising avenue for further exploration.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.