Understanding how Medicaid services help people with Alzheimer's and related dementias
Official title: The Medicaid Waiver Dataset Initiative: The Role of Medicaid Home- and Community-Based Services in Health and Health Care for Persons Living with Alzheimer's Disease and Related Dementias
Funded at Johns Hopkins University · NIH-11134870 · Data updated 2026-11-12
This study is looking at how Medicaid services that help people with Alzheimer's and related dementia can support them in staying at home and living better lives, and it will share what it finds to help improve care for everyone.
Quick facts
| Grant type | R21 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Johns Hopkins University NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project start | May 15, 2025 |
| Project end | May 14, 2027 |
| Funding year | 2025 |
| Award (this year) | $405,049 |
| NIH project number | 1R21AG089381-01A1 |
| Project ID | NIH-11134870 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals aged 65 and older who are living with Alzheimer's Disease or related dementias and utilize Medicaid services.
✕Less likely to help
Patients who are younger than 65 or do not rely on Medicaid for home- and community-based services may not benefit from this research.
What this research studies
This research investigates the role of Medicaid Home- and Community-Based Services (HCBS) in supporting individuals living with Alzheimer's Disease and Related Dementia (ADRD). It aims to create a comprehensive dataset that documents the characteristics of Medicaid HCBS waivers across the United States, which are essential for helping patients remain in their homes and communities. By analyzing this data, the research seeks to evaluate how effective these services are in delaying institutionalization and improving the quality of life for those affected by ADRD. The findings will be made publicly available to inform policy and improve care models.
Why it matters
Potential benefit: If successful, this research could lead to improved Medicaid services that enhance the quality of life for individuals living with Alzheimer's and related dementias.
How similar studies have gone: Previous research has shown that Medicaid HCBS can significantly improve the quality of life for older adults, indicating a promising avenue for further exploration.
Where this research is happening
-
Johns Hopkins University
Baltimore, United States Active
Researchers
- Principal investigator: Miller, Katherine E. — Johns Hopkins University
- Study coordinator: Miller, Katherine E.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.