Understanding how genetic counseling processes affect patient outcomes
Genetic Counseling Processes Result in Outcomes (GC-PRO) Study
This study is looking at how genetic counseling works and how it affects your experience and choices, so we can create a helpful checklist to make these sessions better for patients like you.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-10883690 on NIH RePORTER |
What this research studies
This research investigates the processes involved in genetic counseling and how they impact patient experiences and outcomes. By analyzing real-life counseling sessions, the study aims to identify which specific processes are most effective in improving patient satisfaction and decision-making. Patients will be surveyed to assess their experiences, empowerment, and information needs, while audio recordings of sessions will be evaluated to measure the variability in counseling approaches. The goal is to develop a reliable checklist that can enhance the quality and efficiency of genetic counseling.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals seeking genetic counseling for various health conditions, particularly those related to cancer and cardiology.
Not a fit: Patients who are not seeking genetic counseling or those who do not have access to genetic counseling services may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved genetic counseling practices that enhance patient satisfaction and outcomes.
How similar studies have performed: While there has been limited systematic research on genetic counseling processes, this study aims to fill a significant gap, making it a novel approach in the field.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Zierhut, Heather — University of Minnesota
- Study coordinator: Zierhut, Heather
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.