Understanding how genetic changes affect growth and development in children with specific syndromes

Elucidating epigenetic mechanisms of disease and treatment in Weaver and Sotos syndromes

NIH-funded research Johns Hopkins University · NIH-11131448

This study is looking into how certain changes in our genes affect growth and brain development in children with Weaver and Sotos syndromes, with the hope of finding new treatments to help them grow and learn better.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionJohns Hopkins University NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11131448 on NIH RePORTER

What this research studies

This research investigates the epigenetic mechanisms behind Weaver and Sotos syndromes, which are genetic disorders that lead to abnormal growth and intellectual disabilities in children. By studying these conditions, the research aims to uncover how changes in the epigenome affect normal growth and neurodevelopment. The approach includes analyzing specific genetic disruptions and their impact on cellular pathways, with the goal of identifying potential pharmacological treatments that could correct these issues. This work could provide valuable insights into the broader implications of epigenetics in child health.

Who could benefit from this research

Good fit: Ideal candidates for this research are children diagnosed with Weaver or Sotos syndromes, particularly those aged 0-11 years.

Not a fit: Patients with other genetic disorders not related to epigenetic mechanisms may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new treatments that improve growth and cognitive outcomes for children affected by these syndromes.

How similar studies have performed: Previous research has shown promise in understanding epigenetic mechanisms in other genetic disorders, suggesting that this approach could yield valuable insights.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Cancers
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.