Understanding how family caregivers help residents with advanced dementia in assisted living at the end of life
Official title: Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver Outcomes
Funded at Emory University · NIH-11105964 · Data updated 2026-11-12
This study looks at how family and friends help take care of people with advanced dementia living in assisted living facilities, especially during their final days, and it aims to understand how this support affects both the caregivers and the residents.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | June 1, 2021 |
| Project end | May 31, 2026 |
| Funding year | 2025 |
| Award (this year) | $648,915 |
| NIH project number | 5R01AG069114-03 |
| Project ID | NIH-11105964 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include residents of assisted living facilities who have advanced dementia and their informal caregivers.
✕Less likely to help
Patients who are not in assisted living facilities or do not have informal caregivers may not benefit from this research.
What this research studies
This research investigates the role of informal caregivers, such as family and friends, in providing care to residents with advanced dementia in assisted living facilities, especially during end-of-life care. It aims to understand how these caregivers contribute to the well-being of both the residents and themselves, focusing on the physical and emotional challenges they face. By examining the dynamics of caregiver involvement, the study seeks to identify the impacts on caregiver burden and resident outcomes over time. The research employs a comprehensive approach that includes both qualitative and quantitative methods to gather insights from caregivers and care recipients.
Why it matters
Potential benefit: If successful, this research could lead to improved support systems for caregivers and better end-of-life care for residents with advanced dementia.
How similar studies have gone: Previous research has indicated that caregiver involvement can significantly impact both caregiver and patient outcomes, suggesting that this study builds on established findings.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Perkins, Molly M — Emory University
- Study coordinator: Perkins, Molly M
Related research
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-
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-
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This study is all about making a helpful mobile app for Hispanic caregivers who look after loved ones with Alzheimer's and similar conditions, so they can get the support they need in a way that fits their culture and challenges.
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-
Activities4Care: a digital assistive platform to boost well-being for people with dementia and their caregivers
A new digital platform will provide personalized, meaningful activities for people living with dementia to improve mood, behavior, and quality of life, with guidance for caregivers.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.