Understanding how family caregivers help residents with advanced dementia in assisted living at the end of life
Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver Outcomes
This study looks at how family and friends help take care of people with advanced dementia living in assisted living facilities, especially during their final days, and it aims to understand how this support affects both the caregivers and the residents.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project ID | NIH-11105964 on NIH RePORTER |
What this research studies
This research investigates the role of informal caregivers, such as family and friends, in providing care to residents with advanced dementia in assisted living facilities, especially during end-of-life care. It aims to understand how these caregivers contribute to the well-being of both the residents and themselves, focusing on the physical and emotional challenges they face. By examining the dynamics of caregiver involvement, the study seeks to identify the impacts on caregiver burden and resident outcomes over time. The research employs a comprehensive approach that includes both qualitative and quantitative methods to gather insights from caregivers and care recipients.
Who could benefit from this research
Good fit: Ideal candidates for this research include residents of assisted living facilities who have advanced dementia and their informal caregivers.
Not a fit: Patients who are not in assisted living facilities or do not have informal caregivers may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved support systems for caregivers and better end-of-life care for residents with advanced dementia.
How similar studies have performed: Previous research has indicated that caregiver involvement can significantly impact both caregiver and patient outcomes, suggesting that this study builds on established findings.
Where this research is happening
Atlanta, United States
- Emory University — Atlanta, United States (Active)
Researchers
- Principal investigator: Perkins, Molly M — Emory University
- Study coordinator: Perkins, Molly M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.