Understanding how caregiving networks help children with complex health needs
Official title: Caregiving network contribution to children with medical complexity’s health
Funded at University of Wisconsin-Madison · NIH-11050346 · Data updated 2026-11-12
This study looks at how families of children with neurologic impairments work together with caregivers, like relatives and nurses, to provide the best support for their child's health and well-being, and it aims to find ways to make these support systems even better.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Wisconsin-Madison NIH-funded |
| Lab location | 1 site (Madison, United States) |
| Project start | January 1, 2025 |
| Project end | December 31, 2029 |
| Funding year | 2025 |
| Award (this year) | $745,325 |
| NIH project number | 1R01HD114789-01A1 |
| Project ID | NIH-11050346 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children aged 0-11 years with neurologic impairments requiring significant daily care.
✕Less likely to help
Patients without neurologic impairments or those who do not require extensive caregiving support may not benefit from this research.
What this research studies
This research investigates the role of caregiving networks in supporting children with neurologic impairments who require extensive daily care. It aims to understand how families create and manage these networks, which may include extended family, home nurses, and school aides, to ensure their child's health and well-being. By analyzing the structure and effectiveness of these networks, the research seeks to identify strategies that can improve health outcomes for these children. The study will utilize both quantitative data and qualitative insights to explore the connections within caregiving networks and their impact on child health.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for children with neurologic impairments by optimizing caregiving networks.
How similar studies have gone: Previous research has shown that effective caregiving networks can lead to better health outcomes for children with complex medical needs, indicating that this approach has potential for success.
Where this research is happening
-
University of Wisconsin-Madison
Madison, United States Active
Researchers
- Principal investigator: Coller, Ryan J — University of Wisconsin-Madison
- Study coordinator: Coller, Ryan J
Related research
Other NIH-funded projects on the same topics.
-
BRAVE Innovation Center for Viral Resistance in Chickens
A center at UW–Madison aims to create chickens genetically resistant to avian viruses like H5N1 by identifying host genes involved in virus replication using genome-wide CRISPR screening.
-
Center to Fight Vector-Borne Diseases in the Midwest
A Midwest program brings researchers, public health teams, and vector-control groups together to prevent diseases spread by ticks and mosquitoes.
-
Globally useful predictor for cervical cancer treatment response
This project aims to develop a simple predictive signature to personalize treatment for locally advanced cervical cancer using easy tests and imaging.
-
Neutrophil development with stem cells to understand their behavior
Researchers are studying how neutrophils, a type of immune cell, develop from stem cells to better understand why they can help or harm in infections and inflammatory diseases.
-
WREN: Expanding Research Capacity in Rural Primary Care Clinics
A nationwide network in Wisconsin will strengthen rural primary care clinics to participate in real-world research and bring more clinical trials to communities.
-
Targeting early oral GVHD to improve mouth health after stem cell transplant
A study at UW–Madison will explore why some transplant patients develop painful oral GVHD and test ideas to prevent and lessen mouth-related problems.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.