Understanding how caregiving networks help children with complex health needs

Caregiving network contribution to children with medical complexity’s health

['FUNDING_R01'] · UNIVERSITY OF WISCONSIN-MADISON · NIH-11050346

This study looks at how families of children with neurologic impairments work together with caregivers, like relatives and nurses, to provide the best support for their child's health and well-being, and it aims to find ways to make these support systems even better.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorUNIVERSITY OF WISCONSIN-MADISON (nih funded)
Locations1 site (MADISON, UNITED STATES)
Trial IDNIH-11050346 on ClinicalTrials.gov

What this research studies

This research investigates the role of caregiving networks in supporting children with neurologic impairments who require extensive daily care. It aims to understand how families create and manage these networks, which may include extended family, home nurses, and school aides, to ensure their child's health and well-being. By analyzing the structure and effectiveness of these networks, the research seeks to identify strategies that can improve health outcomes for these children. The study will utilize both quantitative data and qualitative insights to explore the connections within caregiving networks and their impact on child health.

Who could benefit from this research

Good fit: Ideal candidates for this research are children aged 0-11 years with neurologic impairments requiring significant daily care.

Not a fit: Patients without neurologic impairments or those who do not require extensive caregiving support may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for children with neurologic impairments by optimizing caregiving networks.

How similar studies have performed: Previous research has shown that effective caregiving networks can lead to better health outcomes for children with complex medical needs, indicating that this approach has potential for success.

Where this research is happening

MADISON, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.