Understanding how big data can improve genomics medicine in Africa
Official title: Public Understanding of Big data in Genomics Medicine in Africa (PUBGEM-Africa)
Funded at University of Cape Town · NIH-10912568 · Data updated 2026-11-12
This study is looking at how big data can be used in healthcare in Africa, especially in genomics, by talking to patients, researchers, and data providers about their thoughts and feelings on using genetic information, while also considering important ethical issues.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Cape Town NIH-funded |
| Lab location | 1 site (Rondebosch, South Africa) |
| Project start | September 20, 2021 |
| Project end | July 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $386,254 |
| NIH project number | 5U01MH127692-04 |
| Project ID | NIH-10912568 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals over 21 years old who are interested in the implications of big data in healthcare, particularly those with a background in or concern for genomics medicine.
✕Less likely to help
Patients who are not engaged or interested in the use of big data in healthcare or those outside the age range of 21 and older may not benefit from this research.
What this research studies
This research investigates how big data can be effectively used in genomics medicine within Africa, focusing on public engagement and ethical considerations. It aims to understand how different stakeholders, including patients, data providers, and researchers, perceive and interact with big data in healthcare. The project will explore public attitudes towards the use of genetic information and the responsibilities of various groups in managing this data. By addressing ethical, legal, and social issues, the research seeks to enhance the integration of big data into healthcare practices.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and utilization of big data in genomics medicine, ultimately enhancing patient care and health outcomes in Africa.
How similar studies have gone: While the use of big data in genomics is a growing field, this specific focus on public understanding and ethical implications in Africa is relatively novel and has not been extensively studied.
Where this research is happening
-
University of Cape Town
Rondebosch, South Africa Active
Researchers
- Principal investigator: Wonkam, Ambroise — University of Cape Town
- Study coordinator: Wonkam, Ambroise
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.