Understanding healthcare use among people with Sickle Cell Disease in Delaware
Official title: Epidemiologic burden of Sickle Cell Disease: Evaluating Healthcare Utilization of Persons with Sickle Cell Disease in Delaware
Funded at Nemours Children's Hospital, Delaware · NIH-11174125 · Data updated 2026-11-12
This study looks at how people with Sickle Cell Disease in Delaware get healthcare, especially when they visit the emergency room or stay in the hospital, to better understand their experiences and needs over the past ten years.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Nemours Children's Hospital, Delaware NIH-funded |
| Lab location | 1 site (Wilmington, United States) |
| Project start | August 21, 2024 |
| Project end | June 30, 2026 |
| Funding year | 2024 |
| Award (this year) | $257,190 |
| NIH project number | 5P20GM109021-09 |
| Project ID | NIH-11174125 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals diagnosed with Sickle Cell Disease, including both confirmed and probable cases, residing in Delaware.
✕Less likely to help
Patients without a diagnosis of Sickle Cell Disease or those living outside of Delaware may not benefit from this research.
What this research studies
This research investigates how individuals with Sickle Cell Disease (SCD) in Delaware access healthcare services, particularly focusing on emergency department visits and hospitalizations. By collaborating with the Delaware Sickle Cell Disease Collection Program, the study will analyze extensive statewide surveillance data to identify patterns in healthcare utilization among patients with SCD. The research will involve collecting and examining data from various sources, including hospital records and insurance claims, to create a comprehensive overview of the SCD population's healthcare experiences over a ten-year period.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and policies that enhance access to care for patients with Sickle Cell Disease.
How similar studies have gone: Similar epidemiological studies have successfully identified healthcare utilization patterns in chronic diseases, suggesting that this approach could yield valuable insights for Sickle Cell Disease as well.
Where this research is happening
-
Nemours Children's Hospital, Delaware
Wilmington, United States Active
Researchers
- Principal investigator: Gwarzo, Ibrahim Haliru — Nemours Children's Hospital, Delaware
- Study coordinator: Gwarzo, Ibrahim Haliru
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.