Understanding healthcare transitions for young people with intellectual or developmental disabilities
Healthcare Transitions and the Health of Adolescents and Young Adults with Intellectual or Developmental Disabilities
This study is looking at how teenagers and young adults with intellectual or developmental disabilities move from children's healthcare to adult healthcare, and it aims to find ways to make that transition smoother and better for their health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston Children's Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-10900460 on NIH RePORTER |
What this research studies
This research investigates how adolescents and young adults with intellectual or developmental disabilities (IDD) transition from child-centered to adult-oriented healthcare systems. It aims to gather and analyze data from a large population across multiple states to understand the timing and quality of these healthcare transitions. By examining claims data, the study seeks to identify patterns and potential gaps in care that may affect health outcomes during this critical period. The findings could help improve healthcare practices and policies for this population.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and young adults aged 10 to 28 with intellectual or developmental disabilities.
Not a fit: Patients who do not have intellectual or developmental disabilities may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare transitions and better health outcomes for adolescents and young adults with IDD.
How similar studies have performed: Other research has shown success in improving healthcare transitions for similar populations, indicating that this approach has potential for meaningful impact.
Where this research is happening
Boston, United States
- Boston Children's Hospital — Boston, United States (Active)
Researchers
- Principal investigator: Chien, Alyna Tung-Mei — Boston Children's Hospital
- Study coordinator: Chien, Alyna Tung-Mei
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.