Understanding genetic testing for kidney donors
Genetic Testing (APOL1) Decisional Support for Potential Living Kidney Donors
['FUNDING_R01'] · TEMPLE UNIV OF THE COMMONWEALTH · NIH-10842437
This study is looking at how testing for a specific gene can help African American people who want to donate a kidney understand the risks and benefits of doing so, and it aims to create a helpful tool that makes this information easy to understand.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | TEMPLE UNIV OF THE COMMONWEALTH (nih funded) |
| Locations | 1 site (PHILADELPHIA, UNITED STATES) |
| Trial ID | NIH-10842437 on ClinicalTrials.gov |
What this research studies
This research investigates how genetic testing for the APOL1 gene can inform potential living kidney donors, particularly focusing on African American individuals. It aims to develop a decision support tool that helps these donors understand the risks and benefits of genetic testing in the context of kidney donation. The study will involve focus group interviews to gather insights on donor preferences and decision-making processes, ensuring that the tool is tailored to meet the needs of ethnic minority populations. By integrating patient perspectives, the research seeks to enhance informed decision-making among potential donors.
Who could benefit from this research
Good fit: Ideal candidates for this research are African American individuals considering becoming living kidney donors.
Not a fit: Patients who are not considering kidney donation or do not belong to the African American community may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower potential kidney donors with better understanding and support in their decision-making process regarding genetic testing.
How similar studies have performed: Previous research has shown that tailored decision support tools can improve understanding and decision-making in medical contexts, suggesting potential success for this approach.
Where this research is happening
PHILADELPHIA, UNITED STATES
- TEMPLE UNIV OF THE COMMONWEALTH — PHILADELPHIA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: GARDINER, HEATHER MARIE — TEMPLE UNIV OF THE COMMONWEALTH
- Study coordinator: GARDINER, HEATHER MARIE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Acquired Immune Deficiency Syndrome Virus, Acquired Immunodeficiency Syndrome Virus