Understanding Genetic Changes in Muscular Dystrophy

Massively-parallel functional interrogation of genetic variation in CMD-associated alpha-dystroglycan glycosylating enzymes

NIH-funded research Washington University · NIH-11146458

This project aims to better understand the genetic changes that cause certain types of muscular dystrophy, helping doctors diagnose these conditions more accurately.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionWashington University NIH-funded
Lab location1 site (Saint Louis, United States)
Project IDNIH-11146458 on NIH RePORTER

What this research studies

Many forms of muscular dystrophy, including congenital muscular dystrophy (CMD) and limb-girdle muscular dystrophy (LGMD), are caused by changes in specific genes. These conditions lead to muscle weakness and degeneration, making it hard to walk and breathe over time. Currently, it can be difficult to tell if a newly found genetic change in a patient is truly causing their disease. Our team is developing a new way to test a vast number of these genetic changes to see how they affect muscle function. This work will help us improve how we interpret genetic test results for patients with these muscle diseases.

Who could benefit from this research

Good fit: This research is most relevant to patients with suspected or diagnosed congenital muscular dystrophy (CMD) or limb-girdle muscular dystrophy (LGMD), or those with a family history of these conditions.

Not a fit: Patients whose muscular dystrophy is not linked to genetic changes in alpha-dystroglycan glycosylating enzymes may not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to earlier and more accurate diagnoses for patients with muscular dystrophy, potentially opening doors for preventative gene therapies or other treatments.

How similar studies have performed: This project employs a new approach called deep mutational scanning to characterize genetic variants, which is a novel method for this specific application in dystroglycanopathy genes.

Where this research is happening

Saint Louis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-09 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.