Understanding genetic changes in a rare developmental disorder linked to the Shoc2 gene

Functional Characterization of Genetic Variants in Rare Disease Associated with Shoc2 scaffold

NIH-funded research University of Kentucky · NIH-11164232

This study is looking at how changes in the Shoc2 gene might cause Noonan syndrome with loose anagen hair, which affects different parts of the body, and it's using zebrafish to help understand how these gene changes mess with normal cell functions.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Kentucky NIH-funded
Lab location1 site (Lexington, United States)
Project IDNIH-11164232 on NIH RePORTER

What this research studies

This research investigates how mutations in the Shoc2 gene contribute to Noonan syndrome with loose anagen hair (NSLH), a condition that affects various body systems including craniofacial features and the digestive system. By using zebrafish models that carry specific genetic variants found in patients, the study aims to uncover how these mutations disrupt normal cell signaling and differentiation processes. The research employs biochemical and biophysical techniques to analyze the interactions of Shoc2 with other proteins and its role in cellular functions, providing insights into the mechanisms behind the diverse symptoms of NSLH.

Who could benefit from this research

Good fit: Ideal candidates for this research are children under 11 years old diagnosed with Noonan syndrome or related developmental disorders linked to Shoc2 mutations.

Not a fit: Patients with Noonan syndrome not associated with Shoc2 mutations or those over the age of 11 may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to a better understanding of Noonan syndrome and potentially inform new treatment strategies for affected patients.

How similar studies have performed: Previous research has shown success in using zebrafish models to study genetic variants and their effects on development, suggesting that this approach is promising.

Where this research is happening

Lexington, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.