Understanding Gene Therapy for Muscular Dystrophy

Project 3 - Walter_Vandenborne

NIH-funded research University of Florida · NIH-11130234

This project uses advanced imaging to better understand how gene therapy helps patients with Duchenne muscular dystrophy and a rare form of limb girdle muscular dystrophy.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionUniversity of Florida NIH-funded
Lab location1 site (Gainesville, United States)
Project IDNIH-11130234 on NIH RePORTER

What this research studies

We are looking closely at how gene therapy affects patients with Duchenne muscular dystrophy (DMD) who have received a recently approved treatment. Our team uses special MRI scans to see changes in muscles and the heart, which helps us track how the disease progresses and how well the therapy is working. We are also studying a less common condition called limb girdle muscular dystrophy (LGMDR3/R5) to learn more about its progression and find new ways to help these patients. By collecting information from these patients, we hope to find better ways to monitor treatments and identify new targets for future gene therapies.

Who could benefit from this research

Good fit: This project focuses on individuals with Duchenne muscular dystrophy who have received micro-dystrophin gene therapy and patients with sarcoglycanopathy (LGMDR3/R5).

Not a fit: Patients without Duchenne muscular dystrophy or sarcoglycanopathy (LGMDR3/R5) would not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to improved ways to monitor gene therapy effectiveness and identify new treatment targets for muscular dystrophies.

How similar studies have performed: Micro-dystrophin gene therapy has shown promise and recently received FDA approval, while this project aims to further understand its impact and characterize a rarer condition.

Where this research is happening

Gainesville, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.