Understanding Fragile X Syndrome in Families

Genotype-Phenotype Relationships in Fragile X Families

NIH-funded research University of California at Davis · NIH-11111173

This project looks at how Fragile X syndrome affects women differently than men, especially regarding symptoms like anxiety, pain, and immune issues.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of California at Davis NIH-funded
Lab location1 site (Davis, United States)
Project IDNIH-11111173 on NIH RePORTER

What this research studies

We are working to understand why women with Fragile X-associated tremor/ataxia syndrome (FXTAS) often experience more neuropsychiatric problems, such as pain and anxiety, and immune system involvement, compared to men. While men with FXTAS typically have more severe tremor and balance issues, women show a different pattern of symptoms. Our goal is to characterize these differences and explore the underlying molecular reasons, including how RNA toxicity and inflammation might play a role in these varied symptoms.

Who could benefit from this research

Good fit: Ideal candidates for this type of research would be women and men with Fragile X-associated tremor/ataxia syndrome (FXTAS) or those who carry the premutation.

Not a fit: Patients without Fragile X-associated tremor/ataxia syndrome or the premutation would likely not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could lead to better ways to identify and treat the specific symptoms experienced by women with FXTAS, improving their quality of life.

How similar studies have performed: This research builds upon previous work that first described FXTAS and has identified some sex differences, but this project aims to deeply explore the unique challenges faced by women.

Where this research is happening

Davis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.