Understanding Financial Challenges for Families Facing Alzheimer's and Related Dementias
Development of Measure(s) of Financial Hardship and Health Disparities among Individuals Living with ADRD and Their Family Caregivers
This project aims to create better ways to understand the financial difficulties faced by people with Alzheimer's and related dementias and their family caregivers.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Delaware NIH-funded |
| Lab location | 1 site (Newark, UNITED STATES) |
| Project ID | NIH-11160596 on NIH RePORTER |
What this research studies
Families caring for a loved one with Alzheimer's disease and related dementias often face significant financial strain, sometimes having to choose between medical care and other essential costs. This project will create new, specific tools to accurately measure these financial challenges, especially for families with lower incomes or those who are otherwise marginalized. Current methods don't fully capture the unique costs of dementia care or the impact on spouses, children, and grandchildren. By developing and testing these new measurement tools, we hope to reveal the true financial burdens and health disparities caused by these conditions.
Who could benefit from this research
Good fit: This project is for individuals living with Alzheimer's disease and related dementias, as well as their family caregivers, who are experiencing financial hardship.
Not a fit: Patients and caregivers who are not experiencing financial hardship or are not directly involved in providing care may not directly benefit from this specific measurement tool development.
Why it matters
Potential benefit: If successful, this work could help policymakers and healthcare systems better understand and address the financial struggles of families affected by Alzheimer's and related dementias.
How similar studies have performed: While general measures of financial stress exist, this project aims to develop novel, specific tools tailored to the unique financial burdens of Alzheimer's and related dementias, addressing a gap in current understanding.
Where this research is happening
Newark, UNITED STATES
- University of Delaware — Newark, United States (Active)
Researchers
- Principal investigator: Shin, Ju Young — University of Delaware
- Study coordinator: Shin, Ju Young
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.