Understanding epilepsy and its effects on adolescents in Uganda
Epilepsy in Uganda: Clinical characterization and co-morbidities, their relation to stigma among adolescents and impact of a community-based engagement program (AWE Change project)
This study is looking at how epilepsy affects teenagers in Uganda, including other health issues they might have and the stigma they face, with the goal of finding ways to improve their care and support through community involvement.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Makerere University College of Health Sciences NIH-funded |
| Lab location | 1 site (Kampala, Uganda) |
| Project ID | NIH-10923809 on NIH RePORTER |
What this research studies
This research investigates the clinical characteristics of epilepsy among adolescents in Uganda, focusing on the co-existing medical conditions and the stigma associated with the disorder. It aims to engage the community through a program designed to address these issues and improve access to care. By gathering data on the experiences of individuals with epilepsy, the project seeks to highlight the challenges they face and develop strategies to enhance their quality of life. The approach includes community involvement and collaboration with local health systems to ensure sustainable improvements.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and young adults living with epilepsy in Uganda, particularly those facing stigma and co-existing health conditions.
Not a fit: Patients outside of Uganda or those without a diagnosis of epilepsy may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and reduced stigma for adolescents living with epilepsy in Uganda.
How similar studies have performed: Similar community-based approaches have shown promise in addressing health disparities and stigma in other regions, indicating potential for success in this context.
Where this research is happening
Kampala, Uganda
- Makerere University College of Health Sciences — Kampala, Uganda (Active)
Researchers
- Principal investigator: Kakooza, Angelina Mwesige — Makerere University College of Health Sciences
- Study coordinator: Kakooza, Angelina Mwesige
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.