Understanding end-of-life experiences in dementia with Lewy bodies
Identifying Factors Predicting ACcurately End-of-Life in Dementia with Lewy Bodies and Promoting Quality End-of-Life Experiences: the PACE-DLB Study
This study is looking at what affects the end-of-life experiences for people with dementia with Lewy bodies and their caregivers, so we can help families get better support and information during this tough time.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Florida NIH-funded |
| Lab location | 1 site (Gainesville, United States) |
| Project ID | NIH-10831486 on NIH RePORTER |
What this research studies
This research investigates the factors that predict end-of-life outcomes for individuals with dementia with Lewy bodies (DLB) and aims to enhance the quality of their end-of-life experiences. By enrolling dyads of patients with moderate DLB and their caregivers, the study will track changes every six months to identify predictors of death and factors influencing caregiver experiences. The goal is to provide families with better information and support during this challenging time, ultimately improving care for those affected by DLB.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with moderate dementia with Lewy bodies and their caregivers.
Not a fit: Patients with early-stage DLB or those without a caregiver may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved end-of-life care and support for patients with dementia with Lewy bodies and their families.
How similar studies have performed: Previous research has shown that understanding predictors of end-of-life experiences can significantly improve care for dementia patients, indicating potential success for this approach.
Where this research is happening
Gainesville, United States
- University of Florida — Gainesville, United States (Active)
Researchers
- Principal investigator: Armstrong, Melissa Jo — University of Florida
- Study coordinator: Armstrong, Melissa Jo
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.