Understanding Craniometaphyseal Dysplasia

Pathogenic Mechanisms of Craniometaphyseal Dysplasia

NIH-funded research University of Connecticut Sch of Med/dnt · NIH-11115805

This project aims to understand how craniometaphyseal dysplasia develops to find better ways to help patients with this rare bone condition.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Connecticut Sch of Med/dnt NIH-funded
Lab location1 site (Farmington, United States)
Project IDNIH-11115805 on NIH RePORTER

What this research studies

Craniometaphyseal dysplasia (CMD) is a rare bone disorder that causes bones in the face and skull to grow abnormally, along with changes in long bones. This can lead to severe symptoms like headaches, vision and hearing loss, and facial paralysis, sometimes requiring complex surgeries. Our work uses advanced tools, including special mouse models and human cells grown in the lab, to understand how specific gene changes cause these bone problems. By studying how these genetic changes affect bone cells, we hope to uncover the root causes of CMD and identify new ways to treat it.

Who could benefit from this research

Good fit: This research is relevant for individuals diagnosed with craniometaphyseal dysplasia, particularly those with mutations in the ANKH or connexin 43 genes.

Not a fit: This foundational laboratory research is not a direct treatment and may not offer immediate benefits to patients.

Why it matters

Potential benefit: If successful, this work could lead to new treatments or better ways to manage the severe symptoms of craniometaphyseal dysplasia.

How similar studies have performed: This is a renewal of ongoing work, building on previous discoveries about the genetic and cellular changes involved in craniometaphyseal dysplasia.

Where this research is happening

Farmington, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.