Understanding craniofacial microsomia and improving care for affected individuals
Craniofacial microsomia: Accelerating Research and Education (CARE)
['FUNDING_R01'] · SEATTLE CHILDREN'S HOSPITAL · NIH-10791256
This study is looking to learn more about the experiences of people with craniofacial microsomia and their caregivers, so we can improve their healthcare and support, and it welcomes input from both English and Spanish speakers.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | SEATTLE CHILDREN'S HOSPITAL (nih funded) |
| Locations | 1 site (SEATTLE, UNITED STATES) |
| Trial ID | NIH-10791256 on ClinicalTrials.gov |
What this research studies
This research focuses on craniofacial microsomia (CFM), a condition that leads to underdevelopment of facial structures such as the ear and jaw. The project aims to gather insights from individuals with CFM and their caregivers to understand their healthcare and psychosocial experiences. By collecting data from both English and Spanish speakers, the research seeks to enhance the coordination of care and optimize outcomes for those affected. Additionally, the study will address ethical considerations regarding the sharing of clinical data within the craniofacial community.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with craniofacial microsomia and their caregivers.
Not a fit: Patients without craniofacial microsomia or those not involved in the care of affected individuals may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support systems for individuals with craniofacial microsomia.
How similar studies have performed: Previous research has shown success in understanding and improving care for similar congenital conditions, indicating a promising approach for this study.
Where this research is happening
SEATTLE, UNITED STATES
- SEATTLE CHILDREN'S HOSPITAL — SEATTLE, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HEIKE, CARRIE LYN — SEATTLE CHILDREN'S HOSPITAL
- Study coordinator: HEIKE, CARRIE LYN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.