Understanding craniofacial microsomia and improving care for affected individuals
Official title: Craniofacial microsomia: Accelerating Research and Education (CARE)
Funded at Seattle Children's Hospital · NIH-10791256 · Data updated 2026-11-12
This study is looking to learn more about the experiences of people with craniofacial microsomia and their caregivers, so we can improve their healthcare and support, and it welcomes input from both English and Spanish speakers.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 11, 2023 |
| Project end | February 28, 2026 |
| Funding year | 2023 |
| Award (this year) | $344,041 |
| NIH project number | 3R01DE029510-04S2 |
| Project ID | NIH-10791256 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals diagnosed with craniofacial microsomia and their caregivers.
✕Less likely to help
Patients without craniofacial microsomia or those not involved in the care of affected individuals may not benefit from this research.
What this research studies
This research focuses on craniofacial microsomia (CFM), a condition that leads to underdevelopment of facial structures such as the ear and jaw. The project aims to gather insights from individuals with CFM and their caregivers to understand their healthcare and psychosocial experiences. By collecting data from both English and Spanish speakers, the research seeks to enhance the coordination of care and optimize outcomes for those affected. Additionally, the study will address ethical considerations regarding the sharing of clinical data within the craniofacial community.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support systems for individuals with craniofacial microsomia.
How similar studies have gone: Previous research has shown success in understanding and improving care for similar congenital conditions, indicating a promising approach for this study.
Where this research is happening
-
Seattle Children's Hospital
Seattle, United States Active
Researchers
- Principal investigator: Heike, Carrie Lyn — Seattle Children's Hospital
- Study coordinator: Heike, Carrie Lyn
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.