Understanding care gaps and needs for young cancer patients
Clinical Care Gaps and Unmet Needs in Adolescent and Young Adult (AYA) Cancers
This study is looking at the specific challenges that teenagers and young adults with cancer face as they move from children's healthcare to adult healthcare, and it aims to find ways to make their treatment and support better, especially when it comes to things like fertility, costs, and working with different doctors.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Kaiser Foundation Research Institute NIH-funded |
| Lab location | 1 site (Oakland, UNITED STATES) |
| Project ID | NIH-10911979 on NIH RePORTER |
What this research studies
This research investigates the unique challenges faced by adolescents and young adults (AYAs) diagnosed with cancer, focusing on their clinical care and long-term outcomes. It aims to identify gaps in care as these individuals transition from pediatric to adult healthcare systems, which can lead to fragmented treatment and unmet needs. The research will explore issues such as fertility preservation, financial concerns, and the coordination of care among various healthcare providers. By addressing these challenges, the study seeks to improve the overall healthcare experience for AYAs with cancer.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and young adults aged 15 to 39 who have been diagnosed with cancer.
Not a fit: Patients outside the age range of 15 to 39 or those who have not been diagnosed with cancer may not receive benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved care strategies and support systems for young cancer patients, enhancing their quality of life and long-term health outcomes.
How similar studies have performed: While there has been some research on cancer care for younger and older populations, this focus on the specific needs of AYAs is relatively novel and underexplored.
Where this research is happening
Oakland, UNITED STATES
- Kaiser Foundation Research Institute — Oakland, United States (Active)
Researchers
- Principal investigator: Kushi, Lawrence H — Kaiser Foundation Research Institute
- Study coordinator: Kushi, Lawrence H
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.