Understanding barriers to family engagement in neonatal intensive care units

Inequities in family engagement in the neonatal intensive care unit

NIH-funded research Stanford University · NIH-11093465

This study is looking at the difficulties that low-income families face when trying to connect with their premature babies in the NICU, like issues with transportation and language, to find ways to help them be more involved and improve their babies' health.

Quick facts

Grant typeFellowship grant
Study typeNIH-funded research
Funding institutionStanford University NIH-funded
Lab location1 site (Stanford, United States)
Project IDNIH-11093465 on NIH RePORTER

What this research studies

This research investigates the challenges faced by marginalized families in engaging with their preterm infants in neonatal intensive care units (NICUs). It aims to identify structural barriers such as lack of access to paid family leave, childcare, and transportation, as well as language barriers that may hinder family involvement. Through interviews with low-income families and a multicenter survey, the study seeks to gather qualitative and quantitative data on these barriers and their impact on infant health outcomes. The findings will help develop strategies to improve family engagement and reduce disparities in NICU care.

Who could benefit from this research

Good fit: Ideal candidates for this research include families with preterm infants in NICUs, particularly those from marginalized backgrounds facing socioeconomic challenges.

Not a fit: Patients who do not have preterm infants or those who are not facing barriers to engagement in NICU care may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved support systems for families, enhancing their engagement in NICU care and ultimately improving health outcomes for preterm infants.

How similar studies have performed: Previous research has highlighted the importance of family engagement in NICU settings, but this specific focus on structural barriers among marginalized families is relatively novel.

Where this research is happening

Stanford, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.