Understanding Autism Spectrum Disorder Development Over Time

Component A: North Carolina - Advancing Developmental Research using SEED and SEED Follow-up data

NIH-funded research Univ of North Carolina Chapel Hill · NIH-11132787

This research uses a large existing dataset to help us better understand how autism spectrum disorder changes from childhood into adolescence and adulthood.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniv of North Carolina Chapel Hill NIH-funded
Lab location1 site (Chapel Hill, United States)
Project IDNIH-11132787 on NIH RePORTER

What this research studies

We are using information from the Study to Explore Early Development (SEED), which is the largest study of its kind in the U.S. This study collected detailed information from thousands of children with autism, other developmental disabilities, and typically developing children. By looking at this rich data, including symptoms, cognitive abilities, and potential risk factors, we hope to learn more about the causes of autism and how its presentation evolves over a person's life. This work aims to fill important gaps in our knowledge about autism spectrum disorder.

Who could benefit from this research

Good fit: This research uses existing data from children and families who previously participated in the SEED study, including those with autism spectrum disorder, other developmental disabilities, and typically developing children.

Not a fit: Patients not represented in the original SEED study data, or those seeking immediate new treatments, may not directly benefit from this specific data analysis.

Why it matters

Potential benefit: If successful, this work could lead to a clearer understanding of how autism develops and what causes it, potentially guiding future strategies for support and intervention.

How similar studies have performed: The SEED study itself has been a successful, large-scale effort, and this grant builds upon its established data collection to address new questions.

Where this research is happening

Chapel Hill, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-09 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.