Understanding Autism Spectrum Disorder as Children Grow

Component A: Study to Explore Early Development (SEED) Follow up Studies

NIH-funded research University of Wisconsin-Madison · NIH-11126512

This project continues to learn about how autism spectrum disorder (ASD) changes from childhood into teenage years and adulthood by following up with children who participated in a previous large-scale effort.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniversity of Wisconsin-Madison NIH-funded
Lab location1 site (Madison, United States)
Project IDNIH-11126512 on NIH RePORTER

What this research studies

We are continuing to gather information from children and their families who were part of the original Study to Explore Early Development (SEED). This follow-up helps us understand how ASD symptoms, thinking abilities, and other health conditions change over time as children grow older. By collecting more detailed information, we hope to uncover new insights into the long-term journey of individuals with ASD and the factors that influence their development. This work builds on extensive data already collected about early childhood development and potential risk factors.

Who could benefit from this research

Good fit: This project is designed for children and families who previously participated in the Study to Explore Early Development (SEED) cohorts, including those with ASD, other developmental disabilities, and typically developing children.

Not a fit: Patients not previously enrolled in the SEED study would not directly benefit from participation in this specific follow-up project.

Why it matters

Potential benefit: If successful, this work could help us better understand the lifelong journey of autism spectrum disorder, leading to improved support and interventions for individuals as they age.

How similar studies have performed: This project builds upon the successful data collection and established cohorts of the original Study to Explore Early Development (SEED), which is the largest etiologic study of ASD in the US.

Where this research is happening

Madison, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.