Understanding and treating desmoplakin-related heart conditions

Desmoplakinopathies: Integrated Pathophysiology and Therapeutics

NIH-funded research Yale University · NIH-11059891

This study is looking at a heart condition called Arrhythmogenic Cardiomyopathy (ACM) that can cause serious heart problems, especially in younger people, and it aims to understand how certain proteins in the heart are linked to this condition to help identify who might be at greater risk and improve care for those affected.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionYale University NIH-funded
Lab location1 site (New Haven, United States)
Project IDNIH-11059891 on NIH RePORTER

What this research studies

This research focuses on Arrhythmogenic Cardiomyopathy (ACM), a genetic heart condition that can lead to dangerous heart rhythms and sudden cardiac death, particularly in young individuals. The study aims to investigate the role of desmosomal proteins, specifically desmoplakin, in this disease and to identify which individuals carrying mutations are at risk for severe outcomes. By understanding the pathophysiology and genetic factors involved, the research seeks to develop better prevention strategies and therapeutic approaches for affected patients.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals with a family history of Arrhythmogenic Cardiomyopathy or those identified as carriers of desmoplakin mutations.

Not a fit: Patients without a genetic predisposition to desmoplakinopathies or those with unrelated heart conditions may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved risk assessment and management strategies for patients with desmoplakin-related heart conditions, potentially saving lives.

How similar studies have performed: Previous research has shown promise in understanding genetic heart conditions, but this specific focus on desmoplakin-related ACM is relatively novel.

Where this research is happening

New Haven, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.