Understanding and managing symptoms in cystic fibrosis
Advancing Symptom Science and Management in Cystic Fibrosis: Biological, Social, and Clinical Mechanisms
This study is looking to understand the different symptoms people with cystic fibrosis experience, like pain and fatigue, by talking to patients and analyzing their health information, so we can learn how their health and social situations affect their lives and care.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project ID | NIH-11001476 on NIH RePORTER |
What this research studies
This research aims to explore the complex symptoms experienced by individuals with cystic fibrosis (CF) by examining biological, social, and clinical factors. It will involve collecting patient-reported outcomes to identify patterns of symptoms such as pain and fatigue, and how these relate to social determinants of health. Additionally, the study will analyze biological samples to uncover metabolic signatures that may correlate with symptom experiences. Through surveys and interviews, the research will also gather insights into patients' experiences with CF care, aiming to create a comprehensive understanding of how these factors interact.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults aged 21 and older who are living with cystic fibrosis.
Not a fit: Patients who are under 21 years old or do not have a diagnosis of cystic fibrosis may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved symptom management and enhanced quality of life for individuals living with cystic fibrosis.
How similar studies have performed: Other research has shown success in understanding symptom management in chronic diseases, making this approach promising yet still innovative in the context of cystic fibrosis.
Where this research is happening
Atlanta, United States
- Emory University — Atlanta, United States (Active)
Researchers
- Principal investigator: Kavalieratos, Dionysios — Emory University
- Study coordinator: Kavalieratos, Dionysios
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.