Understanding and improving outcomes for children with congenital heart defects
Pediatric Heart Network New York Consortium
This study is looking at congenital heart defects, which are common birth issues, to find out why some patients have different health outcomes, and it involves gathering information from patients to help improve care for everyone affected.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-11005047 on NIH RePORTER |
What this research studies
This research focuses on congenital heart defects, which are the most common birth defects in the U.S. and often lead to serious health issues. By utilizing a collaborative approach that combines various data sources, including clinical registries and social determinants of health, the project aims to uncover the factors contributing to disparities in outcomes among patients. The research will involve collecting detailed patient-reported outcomes and genomic data to enhance the understanding of these conditions and improve clinical practices. Patients will be engaged in a multicenter effort to ensure a comprehensive analysis of the challenges faced by those with congenital heart defects.
Who could benefit from this research
Good fit: Ideal candidates for participation include children under 21 years old diagnosed with congenital heart defects.
Not a fit: Patients with congenital heart defects who are over 21 years old may not benefit directly from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and outcomes for children with congenital heart defects.
How similar studies have performed: Previous research has shown that collaborative, data-driven approaches can significantly enhance understanding and treatment of complex health conditions, suggesting a strong potential for success in this initiative.
Where this research is happening
New York, United States
- Columbia University Health Sciences — New York, United States (Active)
Researchers
- Principal investigator: Richmond, Marc Eric — Columbia University Health Sciences
- Study coordinator: Richmond, Marc Eric
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.