Understanding and improving outcomes for children with congenital heart defects
Official title: Pediatric Heart Network New York Consortium
Funded at Columbia University Health Sciences · NIH-11005047 · Data updated 2026-11-12
This study is looking at congenital heart defects, which are common birth issues, to find out why some patients have different health outcomes, and it involves gathering information from patients to help improve care for everyone affected.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project start | January 1, 2024 |
| Project end | December 31, 2030 |
| Funding year | 2025 |
| Award (this year) | $419,349 |
| NIH project number | 5UM1HL172720-02 |
| Project ID | NIH-11005047 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation include children under 21 years old diagnosed with congenital heart defects.
✕Less likely to help
Patients with congenital heart defects who are over 21 years old may not benefit directly from this research.
What this research studies
This research focuses on congenital heart defects, which are the most common birth defects in the U.S. and often lead to serious health issues. By utilizing a collaborative approach that combines various data sources, including clinical registries and social determinants of health, the project aims to uncover the factors contributing to disparities in outcomes among patients. The research will involve collecting detailed patient-reported outcomes and genomic data to enhance the understanding of these conditions and improve clinical practices. Patients will be engaged in a multicenter effort to ensure a comprehensive analysis of the challenges faced by those with congenital heart defects.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and outcomes for children with congenital heart defects.
How similar studies have gone: Previous research has shown that collaborative, data-driven approaches can significantly enhance understanding and treatment of complex health conditions, suggesting a strong potential for success in this initiative.
Where this research is happening
-
Columbia University Health Sciences
New York, United States Active
Researchers
- Principal investigator: Richmond, Marc Eric — Columbia University Health Sciences
- Study coordinator: Richmond, Marc Eric
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.