Understanding and improving care for lower grade brain tumors.
Administrative Core
This study is looking at lower grade gliomas, a type of brain tumor that mainly affects young adults, and it wants to collect genetic information from patients who have had surgery for these tumors to learn more about how they grow and change over time, while also making it easier for patients to connect and share their experiences through social media.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project ID | NIH-10927349 on NIH RePORTER |
What this research studies
This research focuses on lower grade gliomas, a type of brain tumor that primarily affects young adults. It aims to gather genomic data from patients who have undergone surgery for these tumors, both at diagnosis and recurrence, to better understand their progression. The study will engage patients through various platforms, including social media, to facilitate their involvement in research and improve communication about their health data. By creating a community of 700 patients, the research seeks to enhance patient satisfaction and participation in genomic studies.
Who could benefit from this research
Good fit: Ideal candidates for this research are young adults diagnosed with lower grade gliomas who have undergone surgical resection.
Not a fit: Patients with higher grade gliomas or those who have not had surgical treatment may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved management and treatment options for patients with lower grade gliomas.
How similar studies have performed: Previous research has shown success in patient engagement and genomic studies, suggesting that this approach could yield valuable insights.
Where this research is happening
New Haven, United States
- Yale University — New Haven, United States (Active)
Researchers
- Principal investigator: Claus, Elizabeth B. — Yale University
- Study coordinator: Claus, Elizabeth B.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.