Understanding and improving care for children with craniofacial microsomia
Craniofacial microsomia: Accelerating Research and Education (CARE)
This study is all about understanding the experiences and needs of children with craniofacial microsomia (CFM) and their families, so we can find better ways to support their health and happiness.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-10793661 on NIH RePORTER |
What this research studies
This research focuses on craniofacial microsomia (CFM), a congenital condition that leads to underdevelopment of facial structures in children. The project aims to gather insights from affected individuals, their caregivers, and healthcare providers to better understand their healthcare experiences and psychological needs. By establishing an international community, the research will facilitate the collection of multi-perspective data, which will help identify gaps in care and improve treatment strategies. The ultimate goal is to enhance the overall health and well-being of children with CFM through coordinated evaluations and interventions.
Who could benefit from this research
Good fit: Ideal candidates for this research are children diagnosed with craniofacial microsomia and their caregivers.
Not a fit: Patients with craniofacial conditions other than microsomia may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare outcomes and quality of life for children with craniofacial microsomia.
How similar studies have performed: Previous research has shown success in improving care for congenital conditions through community engagement and multi-perspective data collection.
Where this research is happening
Seattle, United States
- Seattle Children's Hospital — Seattle, United States (Active)
Researchers
- Principal investigator: Heike, Carrie Lyn — Seattle Children's Hospital
- Study coordinator: Heike, Carrie Lyn
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.