Understanding and Improving Autism Care for Children
Addressing Structural Disparities in Autism Spectrum Disorder through Analysis of Secondary Data (ASD3)
['FUNDING_R01'] · OREGON HEALTH & SCIENCE UNIVERSITY · NIH-11117001
This project looks at existing health records to understand why some children with autism receive care later or have unmet needs, especially children of color and those from low-income families.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | OREGON HEALTH & SCIENCE UNIVERSITY (nih funded) |
| Locations | 1 site (PORTLAND, UNITED STATES) |
| Trial ID | NIH-11117001 on ClinicalTrials.gov |
What this research studies
We are gathering a very large collection of health information, including Medicaid records from 16 states, along with details about neighborhoods and state policies. By looking at this combined information, we hope to find out what factors prevent children with autism from getting timely diagnoses and necessary treatments like medication and therapy. Our goal is to identify specific areas where changes can be made to help more children access the care they need. We will also work with experts to suggest practical solutions based on what we discover.
Who could benefit from this research
Good fit: This project focuses on understanding care disparities for children aged 0-11 years with Autism Spectrum Disorder, particularly children of color and those from low-income families.
Not a fit: Patients who are not children with Autism Spectrum Disorder or those not facing disparities in care access may not directly benefit from this specific research.
Why it matters
Potential benefit: If successful, this work could lead to new strategies and policies that help children with autism, especially those from underserved communities, receive earlier diagnoses and better access to care.
How similar studies have performed: While the broad understanding of contextual factors impacting disparities exists, this project aims to create the most comprehensive dataset ever to uncover specific modifiable determinants, making its approach novel in scope.
Where this research is happening
PORTLAND, UNITED STATES
- OREGON HEALTH & SCIENCE UNIVERSITY — PORTLAND, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: ZUCKERMAN, KATHARINE ELIZABETH — OREGON HEALTH & SCIENCE UNIVERSITY
- Study coordinator: ZUCKERMAN, KATHARINE ELIZABETH
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.