Training program for researchers in rare diseases
Rare Disease Clinical Research Training Program
This program is designed to help a diverse group of researchers learn how to study both genetic and non-genetic rare disorders, using a mix of online learning and hands-on experiences, all while focusing on teamwork and making sure everyone in the community is represented.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Research Institute NIH-funded |
| Lab location | 1 site (Washington, United States) |
| Project ID | NIH-10924062 on NIH RePORTER |
What this research studies
This program aims to prepare a diverse group of scholars to conduct clinical and translational research focused on both genetic and non-genetic rare disorders. Over the course of one year, participants will engage in a blended learning model that includes online modules, podcasts, and in-person experiences. The curriculum emphasizes collaboration and team science, addressing health equity and the need for representation from underrepresented populations in medicine. By fostering a multidisciplinary approach, the program seeks to enhance therapeutic opportunities for the rare disease community.
Who could benefit from this research
Good fit: Ideal candidates for this program include individuals interested in pursuing a career in clinical research related to rare diseases, particularly those from underrepresented backgrounds.
Not a fit: Patients who are not interested in research or do not have a background in clinical or translational research may not benefit from this program.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and treatment options for patients with rare diseases.
How similar studies have performed: Similar training programs have successfully increased diversity in clinical research and improved outcomes in rare disease treatment.
Where this research is happening
Washington, United States
- Children's Research Institute — Washington, United States (Active)
Researchers
- Principal investigator: Regier, Debra S — Children's Research Institute
- Study coordinator: Regier, Debra S
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.