Testing a new model for genetic counseling in diverse cancer patients
Prospective Trial of a Linguistically and Culturally Appropriate Mainstreaming Model for Hereditary Cancer Multigene Panel Testing Among Diverse Cancer Patients
This study is looking to create a new way for doctors to help cancer patients from different backgrounds understand and get genetic testing, making it easier for them to access important information without needing a lot of extra counseling, while still having support from genetic counselors when they get their results.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Sloan-Kettering Inst Can Research NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-10885074 on NIH RePORTER |
What this research studies
This research aims to develop and evaluate a new model for genetic counseling and testing that is linguistically and culturally appropriate for diverse cancer patients. It focuses on allowing non-genetics healthcare providers to order multigene panel testing without extensive pre-test counseling, while still providing support from genetic counselors during result disclosure. The study will address the specific informational needs of minority and medically underserved patients, ensuring that the approach is inclusive and effective. By using rigorous experimental designs, the research will assess decision-making, psychosocial impacts, and communication outcomes related to genetic testing.
Who could benefit from this research
Good fit: Ideal candidates for this research include cancer patients from diverse racial and ethnic backgrounds who may benefit from genetic testing.
Not a fit: Patients who do not have a hereditary cancer risk or those who are not interested in genetic testing may not receive benefit from this research.
Why it matters
Potential benefit: If successful, this research could improve access to genetic testing and counseling for diverse cancer patients, leading to better-informed health decisions.
How similar studies have performed: Previous studies have shown promise with mainstreaming models for genetic testing, but this approach is novel in its focus on multigene panel testing and diverse patient populations.
Where this research is happening
New York, United States
- Sloan-Kettering Inst Can Research — New York, United States (Active)
Researchers
- Principal investigator: Hamilton, Jada Gabrielle — Sloan-Kettering Inst Can Research
- Study coordinator: Hamilton, Jada Gabrielle
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.