Tailored mobile app support for Hispanic caregivers of people with dementia
Official title: Focused adaptation of a mobile caregiver intervention for dementia caregivers
Funded at Trustees of Indiana University · NIH-11181655 · Data updated 2026-11-12
This project adapts a secure smartphone app with remote coaching to help Hispanic family caregivers manage dementia-related behaviors.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Trustees of Indiana University NIH-funded |
| Lab location | 1 site (Bloomington, United States) |
| Project start | September 3, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2025 |
| Award (this year) | $181,997 |
| NIH project number | 5K23AG084856-02 |
| Project ID | NIH-11181655 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal participants are Hispanic or Latino informal caregivers who provide regular care for a person with Alzheimer’s disease or related dementia and who own or can use a smartphone.
✕Less likely to help
People who are not caregivers, who do not care for someone with dementia, who lack a smartphone or internet access, or who need intensive medical treatment are unlikely to benefit from this project.
What this research studies
You would help the research team adapt Brain CareNotes, a secure mobile telehealth app, so it fits the needs and culture of Hispanic informal caregivers. The team will use interviews and surveys (mixed methods) to learn caregiver needs and then make focused changes to app content and coaching. They will pilot the modified app with caregivers to see how well it helps manage behavioral and psychological symptoms of dementia and caregiver distress. The work builds on earlier results showing the app reduced caregiver burden and patient behaviors in general samples.
Why it matters
Potential benefit: If successful, the adapted app could reduce caregiver stress and help families manage dementia behaviors with culturally relevant guidance and remote support.
How similar studies have gone: Previous work with Brain CareNotes showed reduced caregiver distress and behavioral symptoms at 3 and 6 months, while tailoring specifically for Hispanic caregivers is a new approach.
Where this research is happening
-
Trustees of Indiana University
Bloomington, United States Active
Researchers
- Principal investigator: Rodriguez, Miriam Jocelyn — Trustees of Indiana University
- Study coordinator: Rodriguez, Miriam Jocelyn
Related research
Other NIH-funded projects on the same topics.
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Rural Dementia Caregivers: Building Knowledge and Skills for Caregivers in Rural Areas
A program to give rural families caring for someone with dementia the knowledge and skills they need, delivered online and aligned with Georgia’s dementia care system.
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Understanding how family caregivers help residents with advanced dementia in assisted living at the end of life
This study looks at how family and friends help take care of people with advanced dementia living in assisted living facilities, especially during their final days, and it aims to understand how this support affects both the caregivers and the residents.
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Improving support for family caregivers of dementia patients
This study is testing a new training program called EnACT that helps family caregivers of people with Alzheimer's and related dementias by using creative activities to improve their well-being and the quality of life for both caregivers and their loved ones.
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Adapting a mobile app to support Hispanic caregivers of dementia patients
This study is all about making a helpful mobile app for Hispanic caregivers who look after loved ones with Alzheimer's and similar conditions, so they can get the support they need in a way that fits their culture and challenges.
-
Adaptation of PATH-Pain for Dementia Family Caregivers Living with Persistent Pain and Negative Emotions
Aimed at helping dementia family caregivers who live with ongoing pain and negative feelings by adapting a pain-management program to fit their caregiving needs.
-
Activities4Care: a digital assistive platform to boost well-being for people with dementia and their caregivers
A new digital platform will provide personalized, meaningful activities for people living with dementia to improve mood, behavior, and quality of life, with guidance for caregivers.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.