Supporting Rare Disease Research
Administrative Core
['FUNDING_OTHER'] · CINCINNATI CHILDRENS HOSP MED CTR · NIH-11143492
This effort helps organize and manage important information for many different studies focused on rare diseases, aiming to improve understanding and care for patients.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CINCINNATI CHILDRENS HOSP MED CTR (nih funded) |
| Locations | 1 site (CINCINNATI, UNITED STATES) |
| Trial ID | NIH-11143492 on ClinicalTrials.gov |
What this research studies
Living with a rare disease can be challenging due to limited knowledge about the condition and difficulties in getting an accurate diagnosis. This project acts as a central hub, providing expert support in data management, statistics, and study design for a network of rare disease clinical research groups. By improving how information is collected and analyzed, this work helps researchers better understand rare diseases and prepare for future clinical trials. Our goal is to make it easier to find effective treatments and improve the lives of those affected by these conditions.
Who could benefit from this research
Good fit: This grant broadly supports research for individuals affected by any of the numerous rare diseases, particularly those whose conditions are being studied within the Rare Diseases Clinical Research Network.
Not a fit: Patients whose rare diseases are not part of the Rare Diseases Clinical Research Network or who are not involved in clinical research may not directly benefit from this specific administrative support.
Why it matters
Potential benefit: If successful, this work will accelerate the discovery of new treatments and improve the diagnosis and management of various rare diseases by providing essential infrastructure for clinical research.
How similar studies have performed: Similar coordinating centers have proven essential for the success and efficiency of large-scale clinical research networks, ensuring data quality and scientific rigor.
Where this research is happening
CINCINNATI, UNITED STATES
- CINCINNATI CHILDRENS HOSP MED CTR — CINCINNATI, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: MACALUSO, MAURIZIO — CINCINNATI CHILDRENS HOSP MED CTR
- Study coordinator: MACALUSO, MAURIZIO
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.