Supporting pregnancy decisions for women with developmental disabilities that affect thinking
Understanding and Supporting Reproductive Decisions Among Women with Developmental Disabilities that Affect Cognition
['FUNDING_R01'] · OREGON HEALTH & SCIENCE UNIVERSITY · NIH-11363900
This project will develop a clear, easy-to-use decision tool to help women with developmental disabilities that affect cognition make choices about planning or preventing pregnancy.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | OREGON HEALTH & SCIENCE UNIVERSITY (nih funded) |
| Locations | 1 site (PORTLAND, UNITED STATES) |
| Trial ID | NIH-11363900 on ClinicalTrials.gov |
What this research studies
You would be invited to share your experiences, knowledge, and needs about pregnancy planning or preventing pregnancy through interviews and simple surveys. The research team will use these conversations and data to design plain-language materials and decision aids that match how you understand information. You, other women with similar disabilities, caregivers, and clinicians will try the tool and give feedback to improve it. The team will refine the tool until it is understandable, trustworthy, and practical for real-life decisions.
Who could benefit from this research
Good fit: Women with developmental disabilities that affect cognition (typically adults) who are thinking about becoming pregnant or avoiding pregnancy, and who can participate in interviews or give feedback on educational materials, are ideal candidates.
Not a fit: People without cognitive-impacting developmental disabilities, children/minors, or those not facing pregnancy decisions are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, the tool could help women with DD-C make more informed pregnancy decisions and reduce unintended pregnancies and related adverse outcomes.
How similar studies have performed: There are few existing tailored decision tools for women with DD-C, so this work builds on limited prior work and is relatively novel.
Where this research is happening
PORTLAND, UNITED STATES
- OREGON HEALTH & SCIENCE UNIVERSITY — PORTLAND, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HORNER-JOHNSON, WILLI — OREGON HEALTH & SCIENCE UNIVERSITY
- Study coordinator: HORNER-JOHNSON, WILLI
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Child Development Disorders