Supporting Black caregivers of individuals with dementia
Official title: Caregiving While Black-LIVE: Empowering Black Dementia Caregivers to Navigate Care
Funded at Emory University · NIH-10721926 · Data updated 2026-11-12
This study is creating a helpful course for Black family caregivers who look after loved ones with dementia, especially Alzheimer's, to give them the knowledge and skills they need to feel more confident and supported in their important role.
Quick facts
| Grant type | R21 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | September 5, 2023 |
| Project end | August 31, 2025 |
| Funding year | 2023 |
| Award (this year) | $433,523 |
| NIH project number | 1R21AG083366-01 |
| Project ID | NIH-10721926 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are Black family members who are caregivers for individuals living with dementia.
✕Less likely to help
Patients who are not Black or who do not have family members living with dementia may not receive benefit from this research.
What this research studies
This research aims to empower Black family caregivers who provide care for individuals living with dementia, particularly Alzheimer's disease. It will develop a comprehensive course that combines synchronous and asynchronous learning to equip caregivers with essential knowledge and skills. The program addresses the unique challenges faced by Black caregivers, including systemic discrimination and health disparities, to enhance their coping strategies and caregiving self-efficacy. By focusing on both emotional and practical support, the initiative seeks to improve the overall well-being of caregivers and those they care for.
Why it matters
Potential benefit: If successful, this research could significantly improve the quality of life and caregiving experience for Black dementia caregivers.
How similar studies have gone: Previous research has shown that targeted educational interventions can effectively support caregivers, making this approach promising.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Clevenger, Carolyn Kay — Emory University
- Study coordinator: Clevenger, Carolyn Kay
Related research
Other NIH-funded projects on the same topics.
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Adaptation of PATH-Pain for Dementia Family Caregivers Living with Persistent Pain and Negative Emotions
Aimed at helping dementia family caregivers who live with ongoing pain and negative feelings by adapting a pain-management program to fit their caregiving needs.
-
Peer support program helping Black families caring for loved ones with dementia
A family caregiver support program led by peers helps Black families caring for older relatives with Alzheimer’s disease or related dementias, delivered virtually.
-
Understanding and improving support for male dementia caregivers
This project focuses on what helps or hinders men who care for people with dementia, with new ideas to reach and support them better.
-
Elder Mistreatment and Self-Neglect in people with dementia and their caregivers
This project looks at how elder mistreatment and self-neglect affect older adults with dementia and what helps or harms them.
-
Automated system to help caregivers find items misplaced by people with dementia
A smart, automated UWB-based system helps caregivers in memory care and other facilities quickly locate items that people with dementia may misplace or hide.
-
Supporting dementia caregivers with an evidence-based community program
A funded program helps caregivers of people with Alzheimer's or related dementias, especially those with limited English, access an adapted, online psychoeducation program to feel supported and reduce distress.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.